Staying Independent...Together

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   is it me?
 From: Jean Antonucci
 To: Member Forum
 Posted: 08-30-2017 10:30
 Message: Lovely patient  with a GI problem Sees specialist 2hrs away  Needs b 12   GI wants me to do    Ok  sure.Happy to help   I get the impersonal faxes which i  frankly resent but ok, with  "orders" .yes it ordered me to do X. I mean it  would be  nicer to say she needs X can  you do?
But b 12 has gone to 164.00 on sale! So I send fax to GI saying not sure  what we can do I know you see her in two days, I left her a message Can we do PO( because hhe literature says most people can replete with po) and I get a call now on my  day off saying the specialists' staff told him I was unwilling to help. I say I am sad that he was told I am unwilling, I said I have spent an hr on this.   I will do anything to help and that  I left a msg for the patietn and have to ask her if she will buy it or try another route or something he says nice talking to  you and hangs up   . I think he p couldnt stand it when I said primary car e is just overwhelmed,But  how about  some collaboration or problem solving Who are these doctors that act like this?? I am not miss huggy or patient myslef  but really.and this business of staff saying Dr A is unwilling to do  I get this alot on the  phone "So you won;t.." and I say  I did not say that" Yesterday   it was neuro surg    Patient with  bad back trouble new symptoms  LAst mri 18 mo ago so not so old but had metal in back lots of artifact  Not clear to me if it is worth getting new one  will ct work or? I send all this to  a lovely neurosurgeon a thoughtful wonderful guy and his nurse calls me saying he will not see her without an MRI I say but that sis the dilemma not sure if it would help thats why I was asking him   how to go forward  She says well he made this protocol no visit  without mri    I say well I am not going to waste an mri we need to ask him  and on and on til I persuaded her that I  w as being thoughtful  yes I know the rules but the rules do not  always fit and we need to think about things    Noone  much cares.
 I get so  sad and lonely

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Jean Antonucci
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